This book is Elise's one momento I kept that is a visual reminder of what Elise used to be able to do, then was taken from her. From the time Elise was 2 years old until about 6 months later Elise used to turn pages in books all day every day. I don't know if I remember ever not seeing her with a book in her hands. She loved them. She especially loved the Winnie the Pooh books. This book was her favorite and was well loved! I would go to the library and get piles of books for her until I noticed a few books, even board books were starting to fall apart and pages were ripped out of books. I never knew board books could fall apart, let alone that quickly. A hefty $40 library fine stopped me checking out books and Elise had to be content with the books at home.
Like her speech I don't remember a specific date or month when I realized she wasn't holding her beloved books anymore. It just happened. Then one day, like her speech I noticed and started to fully grasp what was happening.
Elise had lost most of her hand use.
After that I tried my hardest to place a book in her hands but she couldn't even grasp it anymore. I tried to have her turn a page in a book. She couldn't. Even the thick pages in board books didn't help and hand over hand was futile. Three years later at age 5, Elise still has not regained this skill back. She has made some immense progress in other areas using her hands and I consider each of those successes a miracle. She fights every day to regain lost skills and gain new ones.
Looking at this book is a painful reminder of what she has lost physically. One day, either in this life or the next she will regain this skill back. Her body and mind will be perfect like her spirit already is. Glory be to God! Because of Christ this is possible. It's true. My heart bursts with so much love and reverence and awe at such a glorious thing. And one day I will have my princess read books to me and all that was lost will be made whole again.
This is my easter declaration. Hallelujah!
“For reasons usually unknown, some people are born with physical limitations. Specific parts of the body may be abnormal. Regulatory systems may be out of balance. And all of our bodies are subject to disease and death. Nevertheless, the gift of a physical body is priceless. Without it, we cannot attain a fulness of joy.
“A perfect body is not required to achieve a divine destiny. In fact, some of the sweetest spirits are housed in frail frames. Great spiritual strength is often developed by those with physical challenges precisely because they are challenged. Such individuals are entitled to all the blessings that God has in store for His faithful and obedient children.
“Eventually the time will come when each ‘spirit and … body shall be reunited again in … perfect form; both limb and joint shall be restored to its proper frame’ (Alma 11:43). Then, thanks to the Atonement of Jesus Christ, we can become perfected in Him.”
—Russell M. Nelson, "We Are Children of God," Ensign,Nov. 1998, 86–87
After Elise's speech therapist's recommendation on this new ipad case, I hesitantly decided to switch from Otterbox to KaysCase Kidbox.
And I am so glad I did!
It's incredibly lighter so Elise can actually carry it now without dropping it. She only uses her left hand to carry it. For some reason her right arm doesn't cross midway on her body most of the time so having it lighter has significantly helped her decrease in drops over the last few days.
I love, love the handle that turns into a stand! This is probably my favorite feature. It can stand in two different positions. During her table time at therapy and during meal time this has been so nice. She can just walk up to it and say what she wants rather than getting me to hold it up so she can choose.
I was worried about how it would hold up because of how frequently she does drop it or throw it but it has survived multiple crashes to the kitchen floor, screen down and it's survived. Usually it just bounces since the covering is made of foam. The color is fun for little kids and the price...only $11 on Amazon so overall I'm super pleased with this purchase.
I LOVE being a mom to my 5 kids; one with special needs. There is no greater joy than being a parent! I love each one individually but this blog will mostly focus on our daughter with special needs and our journey with her. Thanks for reading!