Elise's bus aides. They are so sweet and good to her. They both squat down and encourage her to walk up the stairs when she gets on. She has a difficult time walking up the bus stairs, but with the help of the rail and my help she can do it. She has begun to love the bus and when we wait for it to come, she gets a smile on her face and begins to walk towards it.
One of the aides made these cute travel pillows for all the kids. When Elise rides the bus home, she is on there for 30 minutes and almost always falls asleep. This pillow was such a thoughtful idea and I'm grateful my little girl is being taken care of.
I ran my first 10k with my friend. It was so much fun!! I loved training for it and the race was awesome. There was so much energy and Ez and the kids followed us along as we ran, cheering us on.
I made this shirt to run in. I ran for Elise, my silent princess :) She is my inspiration and my teacher. My family and I have been through so much with her. Every feeling I have felt through this process was brought back to me as I was running for her.
As we were near the finish line I saw Ez and the kids on the side. Ez motioned for me to take Elise. Big tears welled up in my eyes as I grabbed her and ran with her to the finish line. It was emotional and the perfect way to end the race!
This face kills me! She pulls this wide open mouth look a lot but haven't been able to capture it much on camera. She sure knows how to make us smile!
We were finally preauthorized to get Elise's genetic testing done. As soon as I got the phone call with the okay, I put the kids in the car, picked up Elise at school and headed to the hospital. We waited a little then they called her back.
It's crazy how we've waited 8 months for this day and it was over in a minute.
One simple blood draw.
I am so grateful to be moving forward to getting our unanswered questions answered. At least I know we are fully covered with this test now and therapy wouldn't have changed much at all if we had got it sooner.
We should know in a couple weeks what the results are.
Tonight Elise was feeling cuddly and it showed by her snuggling with all 3 of us. First she climbed on the couch where Bryn was and buried her way in next to he
A big box showed up on our porch and inside were these beautiful flowers and vase from Ez's co-worker and his family. I'm grateful for their thoughtfulness as well as so many others during this time.
The acts of service vary from gifts, to a listening ear, to having someone to hug and cry to. My friends have been so sweet. So many of them ask how they can help and I have a hard time answering that question when I don't even know what I need. Without asking they brought us meals, cried with me, took me to lunch, and listened. One friend suggested making shirts for our girls with special needs for our upcoming race. It was such a wonderful idea and I can't wait to run in it!
Lots of other people say they are praying for us. They say they feel bad because that's all they can do. What they don't know is that it really does help and I'm grateful for their thoughtfulness. After the first few days, all of a sudden I snapped out of it and I feel stronger now than before. I have felt the strength from everyone's prayers. It is real.
After the first few days of the initial shock with Elise were over, I experienced a paradigm shift. I decided it was time to move on and forget about all these possible "endings" that have consumed my mind.
I want to focus now on a quote from Elder Wirthlin, "Come what may and love it!"
Pres. Utchdorf said, "Being grateful in times of distress does not mean that we are pleased with our circumstances. It does mean that through the eyes of faith we look beyond our present-day challenges." I don't have to love the circumstance I'm in, but I want to embrace and love this new, unique life we have.
Because of it, I have shared the gospel.
Because of it, my faith is stronger.
Because of it, I completely rely on my Heavenly Father.
Because of it, we are a closer family.
Because of it, I have learned how to love stronger than ever before.
No we may not be able to do a lot of things I had hoped our family could do together or that she could do...
I want to put the rest of my time and energy into what we CAN do as a family and what she CAN do! There is so much more energy when I change that one word. It changes the whole feel of our circumstance.
Come what may and love it!
All the kids love this sand and water table! Right now it just has water and I'm sure that's how it'll be for awhile. It's great because now Elise doesn't always have to play in the bathtub and it's something they can all enjoy together. Elise played with it for 1 1/2 hours today! AMAZING!!! Now that is definitely a motivating item.
Yep Elise got in it. Quite a few times actually. Silly girl.
I LOVE being a mom to my 5 kids; one with special needs. There is no greater joy than being a parent! I love each one individually but this blog will mostly focus on our daughter with special needs and our journey with her. Thanks for reading!