A few weeks ago we took a three day trip to Primary Children's Hospital for Elise to undergo further testing. She was admitted to the hospital so they could monitor if she's having any electrical activity in her brain.
I couldn't believe how well she did. The first day she mostly hung out on her bed watching Baby Einstein (she loves those shows), reading books and playing toys with me. She was pretty happy watching her shows and having strawberry milkshakes!
I was really worried how she would do at nighttime with 25 probes all over her head and sleeping in an unfamiliar environment. It took her a couple of hours to settle and she woke up really early, like 4:30AM early but hey, I figured what's one night of really bad sleep, haha!
Day two and our little Elise was getting antsy to move around and leave. Any time anyone would come in then leave, she'd walk to the door and point. As soon as she was discharged she ran out of the room as fast as she could. I don't blame her :)
The bravest, toughest four-year old I know.
By day three we were all exhausted and ready to go home. Before we could leave Elise had a couple more tests done including a sedated MRI. Ez enjoyed his time to snuggle her before the scan.
There was a miscommunication with the staff in regards to us being able to get genetic testing done while we were there. Unfortunately they couldn't do it the way they had anticipated so we are currently waiting for insurance to preauthorize the test which will take another few months. Waiting is something I'm finally getting used to :)
So far, all the results that have come back are normal which we are thankful for. Her EEG did show some electrical activity in the right side of her brain. The neurologist said it doesn't appear that she's having seizures but due to the electrical activity she is having, she could possibly have them in the future.
I'm so proud of how well Elise did during our whole stay there. She's one tough little girl!
I LOVE being a mom to my 5 kids; one with special needs. There is no greater joy than being a parent! I love each one individually but this blog will mostly focus on our daughter with special needs and our journey with her. Thanks for reading!