I received a tender mercy during a moment of frustration.
My friend back east has a son with autism who is a few months older than Elise. She was telling me how many hours of therapy he was getting per week and the progress he was making. I couldn't help but feel jealous and how it wasn't fair how much help he was getting just because of the state he lived in.
One day I felt the most calming and peaceful feeling that our Heavenly Father would make up the difference.
I could only do so much, the state could only do so much, but our Heavenly Father makes all things possible. I know He knows our concerns, worries, and efforts on Elise's behalf and I know He will help Elise grow to her greatest potential here on earth, whatever that may be.
I found this quote and can't help but think of Elise. I love how Anne Pingree uses the same wording as was given to me by the Spirit:
“Sometimes, in spite of all we do to ‘make weak things become strong,’ the Lord, in His infinite wisdom, does not take away our weakness. The Apostle Paul struggled throughout his life with ‘a thorn in the flesh,’ which he said served to humble him ‘lest [he] should be exalted above measure’ (2 Corinthians 12:7). Three times Paul asked the Lord to take away his weakness, and three times the Lord declined to do so. The Lord then explained that His grace was sufficient for Paul and that, in fact, His strength was actually ‘made perfect in weakness.’ Then Paul wrote, ‘Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me.’ …
Elise now has therapy every day.
Before going to therapy today, Elise had a rough morning. She threw her usual temper tantrum at breakfast because she can't communicate to me what she wants. We're using a picture system, but she doesn't understand the concept yet. She does make some choices but if I get 2 things out she doesn't want, she runs away screaming and I've pretty much blown her breakfast time.
This morning she ran away screaming uncontrollably and bit me as I was putting her in her crib. The rest of the morning wasn't much better.
When we got to her gymnastics class, she did so good there. She didn't have one meltdown. We've been going there for 3 months and every week she has had at least one meltdown, so I could see her progress.
She has tactile defensiveness and use to not touch anything there or she would have a meltdown. Today however she touched everything they were doing. The OT pointed out that Elise seemed a lot more regulated today.
After gymnastics we went to the grocery store, she took a nap, then ate great at dinner. She sat in her booster the entire mealtime without screaming! (Haha as I'm writing this I guess I've just gotten use to how much she cries that writing it down makes it seem like she does cry a lot :) She ate good then let me wash her up also without screaming. She ran off without crying, then PLAYED with a NEW toy! Love therapy! I'm one happy mamma :)
I LOVE being a mom to my 5 kids; one with special needs. There is no greater joy than being a parent! I love each one individually but this blog will mostly focus on our daughter with special needs and our journey with her. Thanks for reading!