This quote was from this most recent conference and I love it! It caused me to experience a paradigm shift.
The definition of stellar is: indicating the most important performer or role. That one word changes everything. Elise's spirit is one of the most important. She is the "prima ballerina" as the dictionary explains. It is not necessarily her that needs us but us that needs her.
How grateful I am for her and being a gift to our family.
Elise's therapist did some testing today to see her progress. I became more and more disheartened as the questions continued. No she still wasn't following commands, no she still wasn't pointing to pictures; on and on it continued.
By the end of the session I was done.
Luckily Ez was home sick so I could cry to him. I was so disappointed and frustrated that after HOURS and HOURS and HOURS of therapy, those were the answers I gave.
Thankfully Ez knew just what I needed to hear. He told me, "Look at where she would be without it."
Those words pierced my heart. I knew they were true. I knew that even though Elise has made little progress, it is progress nonetheless. I know that this life she has, is and will be slow and a lot of hard work-for both of us. But I know without therapy she nor I wouldn't have the hope it gives us and hope keeps me going.
Using an app on the ipad, Elise is able to "talk" to us. We're just beginning with this but I am so excited to be able to bridge the gap in communication until she can verbally talk to us. I am feeling very grateful for technology!
I took Elise out later. She liked it for the first few minutes. She'd just look around and smile. Elise has very poor balance; add to that boots way too big and a huge snow outfit and she was really wobbly! It wasn't long until she fell down and that ended her snow fascination.
I am feeling extremely blessed, grateful and happy! Elise's checks came in the mail today. It's been a long, time-consuming process to get to this point. There were some complications so them being here is a tender mercy.
With one of the checks I purchased an iPad and app. She will be using the iPad to communicate with us until she learns to talk. The app is called Proloquo2go. One of the little boys at therapy uses it and I was blown away with the progress he's made and the bridge it made for him and others to communicate.
Elise has been using the therapist's iPad in all of her sessions but now we have one that's just hers so we can use it everywhere. I can't wait to get started and be able to "talk" to each other! That's been one of the biggest challenges I've been facing with her and this iPad means so much to me. I LOVE technology. It is a blessing for sure.
Elise had a really rough night at our ward's Christmas party until she came in the room where Santa was. For some reason she thought he was hilarious because right when she saw him she got the biggest smile ever. After that she couldn't stop giggling. When she gets in these silly moods, she's super wobbly and just giggles. It's so funny! She almost pulled Santa's beard off when she was sitting on his lap.
I LOVE being a mom to my 5 kids; one with special needs. There is no greater joy than being a parent! I love each one individually but this blog will mostly focus on our daughter with special needs and our journey with her. Thanks for reading!