Elise had her EEG done Tuesday morning to test for seizures. She was such a trooper. When I laid her down on the bed she soon began her excited kicks and moving her head back and forth.
All of us agreed she was NOT going to hold still so they rolled her up like a burrito. The tightness of the blanket wrapped around her plus Mickey Mouse Clubhouse made one happy little girl. She laid so still as they made marks all over her head then put wire after wire on.
After it was all done, the nurse turned off the lights and left the room with only me in there. A few minutes went by and I noticed her eyes were starting to close. Another few minutes later and she was asleep and snoring. She was so tired that even when they shined a bright light in her face she stayed asleep.
They had hoped she would fall asleep. I guess keeping her up 2 hours later and her waking up at 5:30AM, like the nurse advised me to do, did the trick.
We should get the results any day.
Elise's hands are constantly moving. These pictures show all the different hand movements she does all the time. The first picture shows her clapping and she claps a lot.
Her hands are in her mouth and she moves her tongue around...
they are slapping her head or brushing her hair back...
her right index finger is in her mouth then to the nose.
We've been asked a lot how we knew Elise had autism before she was diagnosed. Besides her failing her screening, there were many signs that, looking back now, all fall into place. Here's a little bit about Elise for others to understand about her and to help me remember:
Since February I've entered a whole new world.
I've read books, talked to a few people that have kids with autism, and talked to doctors. I know there's still so much I have to learn. It's all very fascinating and what I learn is so helpful in helping me understand Elise better.
I have to parent her so much different than the other kids. When she throws a fit or does something unusual, I first try to understand what may be going on, but I always say at the end, "I don't know!"
The biggest lesson I've learned through all of this is that the most consistent thing with children with autism is the inconsistency. I think I get her, but I really don't know most of the time! This applies to all children but adding sensory issues and other things on top of everything else makes her even more complicated.
She's been getting occupational, speech, and developmental therapy since March. Now that we have a diagnosis, it will help us get more help so she can get even more therapy. I'm just anxious and excited to get things moving along more.
All in all, she's a great happy girl and we love her to pieces! We couldn't ask for a more smiley, lovable little girl. For that I'm extremely grateful and always say to myself, things could be a lot worse.
I LOVE being a mom to my 5 kids; one with special needs. There is no greater joy than being a parent! I love each one individually but this blog will mostly focus on our daughter with special needs and our journey with her. Thanks for reading!