While we were eating dinner, Elise laid her head down on her tray. She fell asleep for 10 minutes. I was hoping she would stay asleep and I could just transfer her to her bed. As I went to pick her up, her eyes got really big (deer in the head light look) and she stared straight ahead. Her arms and legs got really rigid and she began making this gurgling noise in her mouth.
I knew this was not normal and wished I had my video camera handy. I laid her down on the couch, trying to console her the best I could. After 15 seconds she snapped out of it, but seemed confused. She returned to her normal self quickly but my gut kept telling me that wasn't normal.
My first thought was a seizure. I googled seizures and when I came across, "Tonic seizures," it summed up what I had seen. I cried. Seizures are a frightening thing and I certainly don't want a child of mine to experience them let alone me watch my child have them.
The first possible seizure I watched of hers was during sacrament meeting at our church a month ago. She fell asleep on the pew for about 30 minutes. When she woke up, she did the same thing that she did the other night. I was concerned as I watched her, wondering if she was having a seizure.
The only thing that came to me was asking her, "Elise are you all right?" I asked it over and over. I don't know why I did. She couldn't respond to me and probably didn't even understand what I was saying. It was instinct though. I didn't know what else to do. She came to and was fine after but it startled me.
I'm beginning to feel a part of what I felt in May. Any day we can find out from the geneticist about her blood work and a possible diagnosis. I don't do well waiting. I've surprised myself with how fine I've felt up until now. I think knowing any phone call could be it is taking its toll on me. We could be waiting until December though. That's the time frame I'm giving them since these things always take way longer than they say.
Elise will probably have an EEG done next week to determine if she is having seizures. The results won't be a definite. If negative we'll continue to monitor them and get back to our pediatrician.
I LOVE being a mom to my 5 kids; one with special needs. There is no greater joy than being a parent! I love each one individually but this blog will mostly focus on our daughter with special needs and our journey with her. Thanks for reading!